Amenities and prices vary from place to place. Some offer access to a nurse or nurse practitioner. As care needs increase, additional services e. Some communities require that new residents be ambulatory not in a wheelchair at admission. Some places offer subsidized housing for low-income individuals, with stringent limitations.
These facilities are small group homes sometimes called board and care homes or adult foster home that provide supervision, meals and care for people who cannot be left alone but do not require skilled nursing care. Residential care facilities provide assistance with bathing, grooming, eating, using the toilet, and walking, and they also provide socialization and recreational activities. Rooms may be private or shared. Individuals who are somewhat independent but require daily oversight and assistance with housekeeping, medication management and personal care will want to consider an assisted living facility.
Assisted living facilities offer rooms or apartment-style accommodations and, often, social activities. Meals are provided in a shared dining room. Staff is available to assist with care needs such as bathing, grooming, eating or using the toilet, and care is arranged as needed by the individual. Medical staff may be on-site or on call. The monthly charge for assisted living is determined by how much care a person requires and varies widely throughout the US. Some assisted living facilities are dedicated to—or include a separate wing for—those with Alzheimer's disease or other memory impairments.
These "dementia care" or "memory care" units offer a special security-protected environment, and social and other activities designed for the abilities of the residents. This type of facility provides 'round-the-clock care for those who require help with bathing, grooming, going to the toilet and walking. Individuals in these facilities cannot live independently and require nursing care, although the nursing care is not offered 24 hours a day.
Residents generally require a lower level of care than is offered in skilled nursing facilities. Commonly called nursing homes, these facilities provide nursing services 24 hours a day and are designed to provide high levels of personal and medical care, such as administration of injections, monitoring of blood pressure, managing ventilators and intravenous feedings to individuals who cannot function independently. People living in skilled nursing facilities usually require help with the majority of their self-care needs; it would be very difficult to provide this level of care in a home environment.
Medicaid Medi-Cal in California may help cover the costs if residents meet specific financial and medical requirements. Medicare may pay for a time-limited stay after hospital discharge, on a doctor's orders. The Eden or Greenhouse Alternative is a program in certain nursing facilities around the country to make the environment more elder-centered and less institutional. These are set up to encourage as much independence and interaction as possible for the residents, and to be more home-like.
Contact with plants, animals and children is encouraged. The Program for All Inclusive Care PACE is designed for people 55 years or older certified by the state where they reside to be nursing-home-eligible, but who can remain at home with a complement of health and supportive services. Sometimes referred to as a "nursing home without walls" this growing care option is available in many, but not all, parts of the country.
Most participants are Medicaid-eligible. If a person's health deteriorates, a disruptive move to a new community is not necessary. These communities often can be quite large and generally require a substantial entrance fee. Veteran's Communities may be available in your state, and offer multiple levels of care. From independent living with supportive health and social services, to skilled nursing facilities, these communities permit a veteran or their spouse to live in the same community.
Determine your ease with becoming the decision-maker and the person with authority. Be prepared for resistance from your parent if they feel that they can no longer set the rules, control their situation or fear losing independence, but make sure your parent is involved in the decision-making process and that their perspectives and preferences are heard. When possible, allow for negotiation in decision-making activities offering a greater chance for a win-win situation.
Consider how your parent can contribute to the household, such as babysitting, doing light chores or making financial contributions. Think about your spouse's and children's readiness to help with caregiving, and their comfort level with having a grandparent in the home—particularly if he or she suffers from dementia. Think about ways in which your parent's traditional interests, routines and food preferences can be accommodated, without unnecessarily disrupting your own lives. Agree upon financial arrangements up front.
Given available resources, will your parent be able to contribute towards food and utilities? If you have siblings or other family members with whom your parent is comfortable, can you agree in advance that they can stay with your parent, or accommodate your parent temporarily in their home so you are able to get a break from caregiving or take a vacation? Talk about and plan how to accommodate bedtimes, nap schedules and sleeping habits of all family members in the house.
Discuss what types of food you eat, when meals are prepared, and if special diets are required and how they will be accommodated. Consider how you can support your parent's continued participation in social networks such as visiting friends and attending a place of worship and how transportation to these and other activities will be managed. Encourage your parent to keep enjoyable and safe hobbies. Consider how the household noise level and general activity pattern will affect your parent. Determine the amount of time you can devote to your parent's care needs. When will you make phone calls for appointments or to set up needed services?
When will you be able to take your parent to medical appointments? Evaluate whether you will need to make adjustments to your current work schedule and if your employer is willing to accommodate those adjustments. If you will reduce your work hours, determine the implications for your financial picture, career advancement, health insurance and Social Security and retirement benefits.
Consider whether you will have time for your spouse, children and friends. If your parent requires full-time supervision, who will provide it while you are at work or attending your children's activities? Consider the reduced private time you will have to pursue your own friendships, hobbies or exercise, and your need for some time alone on a daily basis. Expect that you will, at times, feel your energy is spent and will need to find a way to rest.
Investigate how to arrange for some time off from caregiving duties "respite" and enlist the help of your family members, friends, a paid aide or a home care agency. Evaluate the amount of available space and whether there is enough privacy. Think about where your parent will sleep. How will a child feel if he or she has to give up a room for a grandparent? If possible, locate your parent on the first floor in order to avoid stairs.
Consider major changes that may be needed in order to accommodate any disabilities or mobility problems, for example wheelchair-accessible bathroom and shower, different door handles, lower light switches. Determine what assistive devices may be needed such as grab bars in the bathroom, raised toilet seats, handrails and a ramp.
If your parent wanders and is at risk for becoming lost, consider special locks, door chimes and other devices that will help keep doors and windows safely secured. Look through your home for hazards such as dangling cords, toxins, slippery surfaces, unsteady chairs, throw rugs. Consider installing a stove-top shut-off device. Install bright non-glare lights above all walkways, and low-cost adhesive strips on steps and other potentially slippery areas such as bathrooms and showers. Adjust temperature controls so that the house is not too hot or too cold.
You need to do what you need to do to protect yourself — family get togethers change over the years. They are not little boys and girls anymore, they are grown men and women and they make their own decisions. You gave them the best guidance you could and they have to make their own lives. I hate to say it this way but you cannot trust that everyone in your family will do what is in your best interest. Hold your ground Anne — and tell them to go F off… Or let me know and I will do so… I had to beat up my brother over how he was treating our mother and how he let her sit in her own feces and urine despite her calling out to him for over 20 minutes read my post above.
I have no regrets for beating my brother up, although he was the one who assaulted me first right after I had spent the time to clean up my mom and make sure she was OK. Make sure you are the only one with POA and set up cameras in the house for your mother if she lives alone in her own house. I would rather my brother Enrique despise me than allow him to continue to abuse my mother emotionally or put her health at risk repeatedly.
One of my brothers continuously failed to keep his promises regarding helping care for our mother. He failed to show up some days and other days showed up late and then wanted to leave early. This created a lot of extra stress to the few of us who were doing all the work helping our mom. This went on for months while our mother was in and out of the hospital and her abilities to care for herself were reduced to zero. This brother Enrique also exposed our mother to danger on a repeated basis, taking her on outings she could not handle, making her walk to the point of exhaustion during his time to care for her and then leaving me or my brother Joe to deal with the repercussions.
Enrique also exposed her to exterior threats when she was medically fragile, leaving her in the care of his abusive girlfriend while he took naps during the 3 or 4 hours of time he was supposed to watch our mom once or twice a week, and many other things that we discovered over time. So it was a surprise he was over.
I was dead asleep after the difficult night. I woke to the repeated sounding of the call alarm that our mother had. At first it was as if I was in a dream. My oldest brother Joe was always good about answering the call quickly. Finally I got up, found the call box far in the kitchen and then went to my mother to see what she needed.
She was lying in her own feces and urine, crying in bed. She said she had been pushing the button for a long time and had needed help to go to the bathroom but no one came. I cleaned her and took care of the mess and then asked her where Joe had gone. After taking care of her I looked outside and saw Enrique far in the backyard talking on his cell phone. I opened the back door and shouted out to him and motioned to the call box alarm in my hand. He kept talking on the phone and waved his hand abruptly at me in an offensive gesture and turned his back towards me and continued his phone conversation.
I then went to the kitchen to get something cold to drink. He shoved me against the stove and began striking me in the stomach several times and using his shoes to stomp on my bare feet. I held his arms and we wrestled and I shoved him back and I ultimately threw him to the floor and punched him in the face five times, in rapid succession.
I was still in my pajamas as I had gotten up from a deep sleep and was still quite tired, but this was over the top and I did what our father would have done had he still been alive and witnessed what I witnessed being done to our mother.
After this my brother Enrique stopped causing direct problems to our mother and sees her briefly once a week by himself as he knows the next time he does something that affects her badly I will take action. He can no longer emotionally or physically abuse our mother with impunity. Our mother dramatically improved after this. However, Enrique had let her Medi-Cal application fail and only through some superheroic actions on my part did it get fixed, but not before I ended up losing days of payment for In Home Support Services that I was due.
These last months have been the worst I have ever seen in terms of how horribly my family can act. As horrible as Enrique has acted, the rest of the family has, by their inaction, only encouraged his behavior. I have been the one constant in caring for our mother. I also cared for our father in his last years, but he died after just two years of his illness. I have seen what my brother Enrique truly is. I always loved and looked up to my older brother Enrique. But now I only have a deep, seething hatred and distrust of him. After my mom dies I hope to never have any contact with Enrique, and even before she goes my contact with him will be quite limited.
If any of you have a brother or sister that behaves this way and you truly love your elder, take matters into your own hands and use violence. Violence in the face of violence is not violence, it is intelligence! And in my situation it was the correct solution to the problem and I have no regrets! There are some situations where it is called for and you must not be afraid to take that step. My mother has her life back now because of what I did on July 4th, It was her Independence Day. I have to deal with this garbage as well.
Nothing I can do about it. I am hoping my parents outlive their savings so there is nothing left. Yes…this is happening to me and my brothers and sisters as well. The difference is I could care less. My goal is my parents. My six siblings can visit if they want or move away if they want. Being the primary care taker is beyond exhausting, and can truly suck the life out of you. I have read more horror stories about families that break up over this.
The arguments, unhappy moms and dads, lack of income, etc…. My greatest suggestion to everyone out there is this…. Make sure your own children are not faced with the horrors you have been faced with. Accept the fact that once you reach a certain age things are going to stop working. They will resent you believe me! Stop thinking that someone in the family wants your collections.
Find a place while you can!
Family Conflicts Over Elderly Parents
Have some control in this! Once you reach your mid-upper 60s…get a living trust going. Have some plan for the next 20 years. Anyway, that is my two cents for the next generation. You inconvenienced the entire family, yet expect them to go out of their way to travel to visit their mother who was nearby until YOU changed that. Have you seen the cost of gas these days? Countless people are suffering financially — you took their mother away, not the other way around!
We are so sorry to hear about the difficulties that you are going through trying to care for your mother. We have additional resources: My brother persuaded me that my mum would be better off living in a house she could buy next door to him in France. He promised a wonderful life for her and drew a nice picture of extended family holidays. I was to spend time there helping to take care of her. To do this she handed over complete control of her finances. As soon as she was there, he and his wife became extremely unpleasant and refuse any contact with me.. They have completely ignored me when I have been there and have gone away and left her alone when the promise had been that I would be there when they were away.
She is completely isolated.. A short trip to the supermarket once a week. She rarely gets through the door of their house. My mother and I are completely traumatised by the situation, she fears my visiting because of his bullying behavour and we have gradually lost all contact. Hmm, I live miles from my mom. Mom is in the hospital, and only one other of us eight has called her. One sister and two brothers have very hard hearts, and massive unforgiveness and selfishness. They will not see her, and they will not call her.
They have broken the Commandment to honor their father and mother. After years of this crap and nonsense I called them on the carpet. I told them I lost all respect for them. This is going to come to a screeching halt. My sister and her family was angry with me and my 86 Yr. My Father had recently listed his home for sale and they moved into an assisted living facility.
I could not reach my Father during this time because he had moved and my sister was still not speaking to me. My Father felt uncomfortable because my sister was helping so much and we only spoke a few times. My Stepmother died, and my sister told my Father that I could go to the funeral but not the after luncheon.
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I had three step brothers that flew to Florida for the funeral. I lived only a two hour drive away. I searched for three months to find my Father. I , at the time knew nothing about my sister taking over and buying his house. I started reaching out to my aunts and found out that my Dad was living with my sister, also in Florida, and ill. All I was given was his cell phone. By this time my sister took him to the ER and he was admitted. I knew my sister would be at the hospital and she would not want me there and make it uncomfortable for my Father.
This was only five months after my Step Mother died. Found out my sister bought his house and he moved back alone! He was not doing well on his own. Instead of taking him for medical care, she took him to her house and neglected his care. This course of events was unknown to me until I saw my sister at the hospital.
I reconciled for the sake of my Father. He was thrilled to see us happy together. We tried everything to give him the will to live and it worked. Until, my sister began making more wrong decisions, leaving me out, and let him die in hospice. We still communicate, but I have to attend counseling due to my anger against my sister and her husband.
I had less then a month with him before he died. I Too Care for my father who has partial dementia and diebetes. His sisteroldest one is giving some slaxk. I will back off think and then respond. May be by not speaking to them about my decisions with Dad. I do have poa. They can speak with Dad. I am having thoughts about doing the same thing.
Family Conflicts Over Elder Care
She went downhill fast health wise. He mooches money off of her all the time, is a thief, and a habitual liar. They had plenty of excuses. The least a sibling can do is send you money. I took them to live with me over 2 years ago. While I was glad to be apart of their lives at this time for them, I was a little disappointed with my siblings who have no regard or respect for all that I do. I also work full time. My daughters are grown, finished school and doing well but they also need me.
One would also think that it might be good to spend some time with your parents in the final years. I just need to get my head around it so I can move on. Well, here is a good one…. I have been dealing with my mom who was in the hospital with pneumonia, copd and so on. He has never held a job his whole life. He is NOT disabled.
My mom cooks for him, does his laundry, mows the lawn, shovels the snow, takes out the garbage and does ALL housework. She has asked for him to help and he refuses. He now controls the living room playing his video games and smoking his 5 packs of cigs a day. The walls, furniture, beds, clothes in the place reek of smoke and the walls drip of nicotine. They are both heavy smokers. Last Tuesday I get a call from my mom that she is having a hard time breathing. I call her dr right away. I get to her home in 5 minutes. I immediately call Later I find out my mom crawled from her room to living room where my brother was since she was too weak to walk, he did not call I find out she asked him to call me he would not so she then again got to the phone on her own to call me.
AND, when doctors tried and tried to call he did not answer. So, while in hospital she quit smoking or she would be dead within the month. She is not over the hurdle yet. So I decided it would be best to move her into another place, non smoking. Found a place near everyone. She agreed until my lazy brother called he and claimed he could not live without her. Everything I worked on to get her into this place was just thrown out the window. My mom is an enabler with my brother. She is 80 and still has her wits about her, so services cannot help me unless she agrees to it.
So I can no longer watch how her living situation is with him,nor can I watch her die. I have never disliked anyone more than this 42 year old man who cares only about his needs and no one else. I tried for years to help. I have told both my siblings to get lost. I have been the sole caregiver for our mother for six years.
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In six years neither on of them ever took the time to come and give me a break. Now my mom lives with me and it was better for me to just let my siblings go. It has helped not knowing what they are doing as they lead their carefree lives. Our mother wants her trust split 3 ways which I feel is very unfair since I have been doing all the caregiving.
I wonder if my siblings feel any guilt? I have been caring for my 97 year old mother for 15 years. I came with nothing and if my siblings have anything to do with it I will leave with nothing. We go weeks without seeing or hearing from my 2 sisters who live 5 min away. They are busy with their lives.
I take care of the big yard alone. No one offers to help. I totally care for mom alone and no one offers to help. I sit and watch as their lives go on and they build their homes and back accounts but I have a FREE life. Yes, I am angry, hurt and a whole lot of other emotions right now. I have been to the point that I want to tell them to come go thru everything and take what they want and I will live with what is left but then I tell myself I am being sarcastic.
My emotions are jumping all over the place. I have given up my children and grandchildren. How do I not be angry???? How do I let go of these ugly feelings I have? The stress in my life seems to suck everything out of me. He decided he now wants a viewing and to be buried with my mother in a double urn. I am one of 5 siblings, 2 say honor her wish to be buried with gram and 2 say bury them together. I have just hours to make a decision, my mothers ashes are waiting for us. I have been living with my mother who has dementia for almost 3 years…very stressful years as her condition deteriorates.
Last year after her hospitalization she was in hospice and I had some home assistance for 6 months but when that ended I was the sole provider. It would never occur to her to come down to the city and spend time with her mother. I had my mother in respite for a month and intend to put her in for another month until I figure out what to do now that I am returning to work.
You and your daughter are to be commended for your unselfish action for your mother. I have exactly the same situation going on with my daughter and myself. They are just waiting to see if they will inherent anything after dad passes. They have nice homes out of state. My daughter has absolutely nothing. She is expecting her first child in August. I only want the best for her, nothing for myself. I totally know what you went through KyPerson. I am happy you have found some peace knowing that you did the right thing for your dad. I have been dealing alone with my fathers dementia.
My two Sisters live out of state and have no clue as to what I have had to deal with caring for him.
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They have not given me any support what so ever. I also had my own daughter accuse me of being cruel and vindictive toward her grandfather. She did want to help and tried to care for him on her own. I applauded her for that. She lived with him for 3 weeks. He finally had a very scary sundowing event happen, which she had never witnessed before. She finally understood how hard it had been for me alone. Her and I have gotten much closer and agreed he needed to be placed in a home.
They both ate just waiting to see if they will inherent anything. I have been feeling hurt and resentful by their attitudes. After reading your posts, I realized that this has happened in many families.
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Thank you so much for your story. My father was at the assisted are unit for 4 months. They took care of him my sisters did nothing but complain , but eventually he refused to eat and drink and finally his organs simply shut down. He was in the hospital and comfortable for 3 days then peacefully slipped away. Three of my sisters are still mean and angry and scapegoating me, but none of my other siblings are I have 8. I know I did my best and did almost all of it myself. If my sisters unbend, fine. I will not let anger and resentment eat me up.
This article offers very cogent and helpful advice. But sometimes in this situation responsible people find themselves dealing with siblings who for a variety of reasons, i. Tales From the Family Crypt. I took care of my father who has dementia for three years all the time working full time. The stress was incredible. At first, I could leave him but he began to wander and get very confused to the point that he was in danger. He is in assisted living now. They seem to think I should have retired and become a full time caregiver. Between work and caring for him, I was getting very close to a nervous breakdown.
I am in therapy now. I will be ready when they are. I am not going to gag myself with hate. Even loving families can find themselves in a standoff, each generation unable to see the other's point of view. Mary Casavecchia is 87 now. She was working part time as a bookkeeper until three years ago. She has memory problems, diabetes, and painful knees. Linda Casavecchia made her mother give up driving three years ago, and it's still a sore subject. Her mother turns off the air conditioner on hot days. She is confounded by the remote to her new TV. She fell on the cellar steps last year.
Her bed is in the living room, and there's a commode in the dining room - like so many Philadelphia houses, hers doesn't have a bathroom on the first floor. Linda Casavecchia, 57, who lives a few blocks away, comes every day to empty the commode, straighten up, and talk. She heats dinner and makes sure her mother has eaten breakfast, tested her blood sugar, and taken her medicine. Some days, Casavecchia washes her mother's hair in the kitchen sink and gives her a sponge bath there.
She worries about the day her mother can no longer walk. Mary Casavecchia, an outgoing woman with thick, gray hair and lively eyes, won't even consider bringing in hired help, much less moving to assisted living where her daughter thinks she'd like the company. Why should I go and sell it to somebody else? For all the current enthusiasm for helping seniors stay in their homes, there can come a point where aging in place starts to look more like a potential train wreck - at least to the kids - than an idyllic way to grow old.
Adult children are left with the wrenching choice between worrying incessantly and taking on more and more caregiving, or trying to force an obstinate parent to move. Leslie Boyle, a Swarthmore woman whose mother - now in her 90s - is even more adamant about not moving than Mary Casavecchia, agonizes. Meanwhile her mother, who is wary of strangers and did not want her name used, said she's happy where she is. She feels young and says there's nothing wrong with her mind, though she has dementia. More than 13 million older adults were living alone in , including 46 percent of all women 75 and older.
It's hard to know how many parents and adult children are at impasse, as the topic has received scant academic attention. A recent study by Allison Heid, a developmental psychologist at Rowan University, found that 77 percent of middle-aged adults said their parents were stubborn sometimes. Sixty-six percent of parents agreed. His book, Meditations for Caregivers, written with his wife, Julia Mayer, was published this summer. O verwhelmingly, older adults at all socio-economic levels say they want to stay in their homes as long as they can.
It's a difficult subject to study, and science has little to offer about whether frail elders are generally happier, mentally sharper, or healthier in their longtime homes or apartments, their children's homes or assisted living facilities. Families have to feel their way through, sometimes with the help of counselors, care managers, doctors, and lawyers. If parents will accept help - and many balk - modern technology and in-home services can help seniors stay at home, but not always to the end.
Often, the conflict simmers until a health crisis forces a move to the "first open bed," said Kimberly Van Haitsma, an expert on senior housing at Pennsylvania State University who also advises the Abramson Center for Jewish Life in North Wales. When possible, she said, it's much better to tour facilities - together - before a broken hip or stroke forces the issue.
The decision is dauntingly complex, forcing families to grapple with their ability to provide care in the home or pay for help. A lifetime of relationship baggage and cognitive changes that can make it hard for some seniors to evaluate risk and take action further complicate the issue. Added to all that: Money is often a factor.